Warning- This post deals with subjects some people may find upsetting.
2023 is the year I lost
my Mum. It was a loss that I felt particularly as I had been her primary carer
for seven years though I never classed it as that till someone pointed it out.
Such an endeavour inevitably took a lot of time and took its toll on me too.
Mum had dementia but thankfully she was still able to converse and understand
stuff. I’d been looking after her at home as best I could but after she went
into hospital in May last year it soon became obvious she would not be able to
return there and we had to look for a care home.
When you say `care
home` it triggers a certain reaction from people and its not a positive one.
People always say `I could never go into a care home` or `I could never put my
relative into a care home` but mostly there is no choice. The care home mum spent
her last six months was thankfully an example of a good one. The staff did as
much as they could to make her comfortable and they worked long twelve-hour
shifts. I thought looking after one person was hard work but imagine dozens,
each with different needs and behavioural traits. I’d go in and see her each
evening and at weekends, visits that both of us looked forward to. The staff
said she smiled more when she saw me walk in than any other time and I hope
that I was able to cheer her up even if, due to the nature of her illness, it
was only for the time I was there as her short term memory was quite poor. One
of the traits of dementia can be that the sufferer stops recognising family and
friends and the strange thing was that while this had started to happen when I
was at home with her, when I visited her in the care home she always knew me.
In February she
celebrated her ninety sixth birthday and the staff made a fuss of her including
presenting her with a large cake. I wish I could have been there but when I did
arrive later, she was still enthusing about it which itself was rare. I am so glad
she had a good last birthday. Remarkably the only piece of footage I have of
her is on that day as one of the staff thoughtfully filmed her getting the
cake. Somehow, instinctively I knew how important that short clip was when I first
saw it.
Less than two months
later I got a call to tell me she had fallen earlier and was now in a bad way,
probably she had another stroke. She was asleep mostly after that but on the
Wednesday of that week she woke briefly to complain she was too hot so I moved
the blanket whereupon she was cold so I put it back! Then she drifted asleep
again. This basic exchange was our final conversation. Unlike in the films
there was no big goodbye, no drama, just the ordinary.
It is very difficult to
describe what its like to lose someone who had always been there for your
entire life. It leaves such a void which you cannot be filled. Yet I was so
lucky to know her for so long and to progress through the journey from her
looking after me to me looking after her and everything in between. Unlike many
people in my situation there is no unfinished business, no lingering issues,
just the ups and downs of a parent and child.
For the funeral I wrote
the eulogy, a summation of her life, at least what I remembered as people of
her generation rarely documented their lives as we do now. I’m not one for
public speeches on any occasion so a celebrant read it out professionally
sounding like he had known her when in fact they’d never met. During this
speech the sunshine which had been hiding away broke through and I looked at
it’s rays filtering through the branches of a nearby tree. Then our chosen
music played. Who said life can’t be like films? As much as a funeral can ever
be described as such it was a perfect goodbye. I thought Mum would have liked
it - simple, dignified, respectful.
Eight months later I am
moving on I suppose, as we must, yet often I think of mum and what she would
have said, what she might have thought. I always used to be sceptical about the
sort of things people said about the person always being there in your mind but
it is true. She is gone but she is still there. I will see something quite trivial
and for just a millisecond think I’ll have to tell her about it but it happens
less as time goes on.
I know that grief is a
difficult topic to talk about and analyse as it affects people in different
ways and this post reflects nothing more or less than my personal experiences.
What I can say is that it does get better. At first it is easy to fall into the
mind set of thinking of yourself- your loss, your grief, your pain. “What am I
going to do now?” Then it becomes about them as you approach the funeral. There
is so much stuff to do, things you never imagined beyond all the administration
if it.
Yet the hardest time I
found was afterwards. When all the sympathy and ritual is finished, when
everyone goes back to their lives, what then? I found the answer is time. I
decided not to look into what seemed like an endless night but focus on what
was happening there and then, day by day. After all the majority of our time is
spent on small, ordinary things and if I focussed on those the bigger things
would come later.
If anyone asks how you
cope with grief I can’t give a definitive answer because it is different for
everyone. What I can say though is its better if you have good memories of
things that did happen rather than regrets about things not said or done. I was
lucky to know my mum for such a long time, a lot of people have not had that for
whatever reasons. So if you don’t see your mum much or there’s been a fallout,
or you’re just too busy then my advice, for what its worth, would be to change
that. Take the time to see them while they are there rather than always regretting
not doing so. Its too late when they aren’t there and then that’s on you. Good
things don’t last forever so appreciate them while you can.
I appreciate you sharing your story. It resonates with me, as at my suggestion my wife recently began arranging monthly meetings with her mom, who's had a stroke and is showing concerning signs. I’m hoping these regular visits will help minimize any feelings of regret in the future.
ReplyDeleteI lost my mum in September 2021. She was 73, and had suffered from atrial fibrillation for about 10 years. As a result she was always at risk of stroke or heart attack, and that's exactly what happened albeit out of the blue. While she started to recover initially, a brain bleed sealed her fate and she was put on end of life care. She hung on for 9 days before finally slipping away, surrounded by strangers as we had been prevented from seeing her in the last couple of days due to COVID protocols. The nurses were lovely, and one in particular enabled me and my stepfather to visit when the otherwise stern ward nurse wouldn't have allowed it. There were no goodbyes as we simply didn't know how long she'd survive, so every visit was effectively the last one. Then one day it was.
ReplyDeleteMy own experience of grief I can liken to how I imagine it would be to lose a limb. Something permanent and a part of yourself is suddenly no longer there, you don't get an artificial replacement and nobody makes concessions for you. The disability is invisible to everyone bar the very close. Time, as you say, does enable you to learn to live with the loss, but it never ever gets any easier. You carry on simply because you must, and appreciate the times when her absence is no longer the first and last thing on your mind. I still feel attached to her as though the umbilical was never cut, and I suspect I always will.